Read answers to frequently asked questions
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How to Navigate Treatment
VIJOICE® (alpelisib) tablets
Top tips for treatment
In addition to taking VIJOICE® (alpelisib) tablets as prescribed, the following tips can help ensure you feel confident and prepared throughout your treatment journey:
Prepare for your appointments
- Jot down appropriate questions to ask your doctor
- Communicate with your doctor if medication side effects are bothering you
Take notes during appointments
- Bring a notebook or journal with you so you don’t have to rely on remembering every important detail
- Writing things down will allow you to review important information after the appointment when you are back home
Check for refills
- When getting medication, check to see how many refills you have left
- Set up reminders on your phone that notify you when you will be running low on medication
Types of health care teams
PIK3CA-Related Overgrowth Spectrum, or PROS, care teams are as unique as the conditions they treat. Depending on your situation, you may be treated in a Vascular Anomalies Center and/or by individual doctors.
- A Vascular Anomalies Center is made up of multiple types of doctors, called a multidisciplinary team. These doctors collaborate and communicate together to treat and manage many parts of your PROS condition. The goal of this team is to provide you with the most comprehensive care possible
- You may also see individual doctors, like a family pediatrician or internist, to manage the diverse features of your PROS condition. Sometimes, these doctors are not connected with a multidisciplinary team, so you might see them in a one-on-one setting
Make sure to discuss with your doctor or health care team what you both hope to achieve with VIJOICE treatment. Learn more about the kinds of specialists you may work with throughout your journey with VIJOICE.
Find a multidisciplinary team
The International Society for the Study of Vascular Anomalies (ISSVA) has created a list of multidisciplinary teams that treat vascular anomalies, which may be signs and features of PROS. ISSVA believes that a team environment is the best setting for managing the complex problems that arise when treating vascular anomalies.
To view the list of multidisciplinary care teams, visit https://www.issva.org/resources/multidisciplinary-teams.
Download helpful materials to support you throughout your VIJOICE treatment journey